American Asperger's Association Support Group

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» Chambers of Hope (COH) and American Aspergers Association (AAA)
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» Introductions
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» June 4th 2011
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» Free Home Speech Practice Home offer
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» Support group meeting and hbot volunteers
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» Favor....Locals..read..please...
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» Developmental Disabilities (AAIDD) is hosting the first of its best practices webinars
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» We need to start this website back up again!
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» Group Home Manager is Yelling I Need Help
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» Facebook
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» Support Group Meetings 2011 *EDITED*
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» community happenings!
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» Asperger's (how it is diagnosed and treated)
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» What do you do when people look at you by the pills you take vs. the person you are?
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» Items under your nose that are gluten free, and cheap too!
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» Adam
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» Looking for friends
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» Maas-Rowe Carillon Questions
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» Video Emails from Dr. Ron
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» Ah, it's good to be back.
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» 1st Annual Aspergers Volleyball Tournament
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» free event: Therapeutic Recreation Adapted Sailing and Kayak Clinic
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» Help! I Seem to be Getting More Autistic!" ARTICLE
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» Was this teacher out of line?
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» OMG THE PLACE IS REMODELED!!!!
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» Got Plates?
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» Local IEP Advocate!! THANKS VAL!!!
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» Pinellas ESE advisory board meetings
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» Dentists who use sedation.. thanks Dr. Ron
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» Hey GAB!!!!!!!!!!!!!!!!!
Answers to questions asked I_icon_minitimeWed Feb 24, 2010 5:25 am by csweepigirl

» Autism in the news: WASHINGTON (Reuters) - A hormone thought to encourage bonding between mothers and their babies may foster social behavior in some adults with autism, French researchers said on Monday.
Answers to questions asked I_icon_minitimeThu Feb 18, 2010 7:01 am by csweepigirl

» **********echo*******************
Answers to questions asked I_icon_minitimeSun Jan 31, 2010 11:16 pm by KelleyNNelson

» Any ideas on how to make a gluten regression easier for both child and family?
Answers to questions asked I_icon_minitimeWed Jan 06, 2010 9:47 am by csweepigirl

» Hi! Long time no see.
Answers to questions asked I_icon_minitimeMon Dec 21, 2009 3:04 am by KelleyNNelson

» Hellooooo? Need some freakin' help here.
Answers to questions asked I_icon_minitimeTue Dec 15, 2009 8:50 am by man of a million names

» Cats or dogs? Summer or winter?
Answers to questions asked I_icon_minitimeMon Nov 23, 2009 6:47 am by man of a million names

» Mozark and the whale *aspergers movie* on showtime on demand.. SUCKED by the way
Answers to questions asked I_icon_minitimeMon Nov 23, 2009 6:42 am by man of a million names

» Adult Aspergers Syndrome
Answers to questions asked I_icon_minitimeSun Nov 22, 2009 4:07 pm by KelleyNNelson

» Asperger’s Syndrome: A Developmental Puzzle by Michael McCroskery
Answers to questions asked I_icon_minitimeSun Nov 22, 2009 12:22 pm by csweepigirl

» Really Cool Super Awesome Thing! Kim And Kelly You Have To Read This!
Answers to questions asked I_icon_minitimeFri Nov 20, 2009 4:24 am by man of a million names

» 2 Articles of Interest Re: Aspergers
Answers to questions asked I_icon_minitimeThu Nov 19, 2009 6:15 am by csweepigirl

» Accidently stubled across some info about meletonin oops!
Answers to questions asked I_icon_minitimeTue Nov 10, 2009 2:41 pm by csweepigirl

» Lack of Services for ASD
Answers to questions asked I_icon_minitimeMon Nov 09, 2009 8:04 pm by Dr. Ron

» New and having a hard time
Answers to questions asked I_icon_minitimeWed Nov 04, 2009 3:40 am by lovethefish

» Sorry I haven't been around as much (update)
Answers to questions asked I_icon_minitimeTue Nov 03, 2009 10:53 pm by KelleyNNelson

» Having a hard time again
Answers to questions asked I_icon_minitimeTue Oct 20, 2009 8:35 am by man of a million names

» Important paradox/riddle! Anyone care to help with it?
Answers to questions asked I_icon_minitimeMon Oct 19, 2009 10:46 pm by KelleyNNelson

» Follow through or not.
Answers to questions asked I_icon_minitimeThu Oct 15, 2009 4:01 am by csweepigirl

» New Pediatrics Autism Study Putting Prevalence at 1 in 91
Answers to questions asked I_icon_minitimeWed Oct 14, 2009 11:45 am by csweepigirl

» Different Directions
Answers to questions asked I_icon_minitimeFri Oct 09, 2009 12:41 am by csweepigirl

» AS is a very difficult diagnosis to make.
Answers to questions asked I_icon_minitimeThu Oct 08, 2009 1:47 pm by csweepigirl

» How is everyone?
Answers to questions asked I_icon_minitimeMon Sep 21, 2009 9:48 pm by Jerry Graham

» CD to benefit the AAA ~!!!!! Check this out!!
Answers to questions asked I_icon_minitimeMon Sep 21, 2009 11:14 am by bassfiddlesteve

» I met Joe Diffie's son!
Answers to questions asked I_icon_minitimeSun Sep 20, 2009 8:01 am by csweepigirl

» Anyone feel like helping me smack the crap out of my former boss?
Answers to questions asked I_icon_minitimeSun Sep 20, 2009 7:56 am by csweepigirl

» Lazy or Aspergers?? or both?
Answers to questions asked I_icon_minitimeSun Sep 20, 2009 5:20 am by man of a million names

» The right thing?
Answers to questions asked I_icon_minitimeTue Sep 15, 2009 7:27 am by man of a million names

» Mark Fowler and his wonderful work.
Answers to questions asked I_icon_minitimeSun Sep 13, 2009 5:51 am by man of a million names

» A.A.A. RESEARCH STUDY. Do you see any differences between females with Aspergers vs. males with Aspergers
Answers to questions asked I_icon_minitimeThu Sep 10, 2009 1:49 pm by csweepigirl

» What happened?? because I don't know, do you?
Answers to questions asked I_icon_minitimeThu Sep 10, 2009 6:24 am by man of a million names

» Haha, Funny URL.
Answers to questions asked I_icon_minitimeWed Sep 09, 2009 9:15 am by man of a million names

» Dude! Kim, I forgot to tell you... and maybe anyone else at the last meeting...
Answers to questions asked I_icon_minitimeSat Sep 05, 2009 4:59 am by man of a million names

» My son is making strange noises!
Answers to questions asked I_icon_minitimeFri Sep 04, 2009 11:41 pm by KelleyNNelson

» Terrible sound on video
Answers to questions asked I_icon_minitimeFri Sep 04, 2009 9:30 am by man of a million names

» Aspian or Aspergian?
Answers to questions asked I_icon_minitimeFri Sep 04, 2009 7:22 am by man of a million names

» If you, or you know someone who needs a BIG/HUGE carseat..
Answers to questions asked I_icon_minitimeFri Sep 04, 2009 12:33 am by csweepigirl

» Just a quick hello
Answers to questions asked I_icon_minitimeWed Sep 02, 2009 7:37 am by man of a million names

» We started the FLDRS process...and here's what we found out so far
Answers to questions asked I_icon_minitimeWed Sep 02, 2009 7:19 am by man of a million names

» Support Groups
Answers to questions asked I_icon_minitimeSun Aug 30, 2009 1:31 pm by KelleyNNelson

» (Aspergers) Boy Meets Girl Movie
Answers to questions asked I_icon_minitimeTue Aug 25, 2009 8:13 am by man of a million names

» I give up, with trying to ever just relax, really.. I'm so flustrated!
Answers to questions asked I_icon_minitimeMon Aug 24, 2009 9:15 am by man of a million names

» Basic White or Yellow Cake
Answers to questions asked I_icon_minitimeSat Aug 22, 2009 6:33 am by man of a million names

» When did this category get here?
Answers to questions asked I_icon_minitimeSat Aug 22, 2009 1:55 am by man of a million names

» Pork Fried Rice
Answers to questions asked I_icon_minitimeThu Aug 20, 2009 11:17 pm by man of a million names

» Why Are The Private Messages Still Disabled????
Answers to questions asked I_icon_minitimeThu Aug 20, 2009 10:48 pm by man of a million names

» Sorry I've been M.I.A.
Answers to questions asked I_icon_minitimeWed Aug 19, 2009 6:04 am by man of a million names

» 5Km Run For AS!
Answers to questions asked I_icon_minitimeFri Aug 14, 2009 11:30 pm by man of a million names

» Help for a mother.
Answers to questions asked I_icon_minitimeWed Aug 12, 2009 12:01 pm by Dr. Ron

» Aspergers and empathy
Answers to questions asked I_icon_minitimeSat Aug 08, 2009 11:41 am by csweepigirl

» We are the three amigo(a)s!Aanyone care to join?
Answers to questions asked I_icon_minitimeFri Aug 07, 2009 12:42 am by man of a million names

» Vaccinations, Red Book, What?
Answers to questions asked I_icon_minitimeThu Aug 06, 2009 12:21 am by Dr. Ron

» What is the first step?
Answers to questions asked I_icon_minitimeWed Aug 05, 2009 7:14 am by Dr. Ron

» Children who can’t cuddle
Answers to questions asked I_icon_minitimeMon Aug 03, 2009 1:27 pm by csweepigirl

» Challenging popular myths about autism
Answers to questions asked I_icon_minitimeFri Jul 31, 2009 10:59 pm by Dr. Ron

» I NEED your HELP!!
Answers to questions asked I_icon_minitimeSat Jul 25, 2009 2:41 am by melissa

» Ok..what do I do? any suggestions..
Answers to questions asked I_icon_minitimeFri Jul 24, 2009 3:53 am by melissa

» Back home!
Answers to questions asked I_icon_minitimeWed Jul 22, 2009 2:10 pm by KelleyNNelson

» Any spanish speakers willing to help an aspie in spain?
Answers to questions asked I_icon_minitimeWed Jul 22, 2009 1:34 pm by csweepigirl

» Gluten Free Simple Bread
Answers to questions asked I_icon_minitimeTue Jul 21, 2009 11:49 am by csweepigirl

» More research (genetics)
Answers to questions asked I_icon_minitimeTue Jul 21, 2009 11:43 am by csweepigirl


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Answers to questions asked

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1Answers to questions asked Empty Answers to questions asked on Mon May 18, 2009 11:40 pm

IWPerez


1. How did you hear about the American Asperger's Association (i.e. internet search engine, school, library, doctors office, existing member, etc) and what benefits are you looking to gain from our family?

Answer: Your video commentating on a Larry King Live show (subject: autism-vaccination debate) was listed on YouTube, along with the segments of that show. I was pleasantly surprised to find that your organization sides with Dr. Bernadine Healy and those who feel that the question needs to be explored further.

2. Do you or any adult relative, friend, etc. have or suspect you/they have an autism spectrum disorder, for example Asperger's Syndrome? If yes, please share your/their story with us. It will help us to get to know you better, and many of our members will be able to easily relate and bond with you.

Answer: I do not have Asperger's, though I may have had mild characteristics of Asperger's as a child (undiagnosed). I have known adults or soon-to-be adults who have Aperger's, but that is not the reason for my interest in the subject.

3. Do you have or care for a child that has or you suspect that they have an autism spectrum disorder, for example Asperger's Syndrome? If yes, please share your/their story with us. It will help us to get to know you better, and many of our members will be able to easily relate with and bond with you.

Answer: My son was diagnosed with PDD-NOS by a neurologist in 1996, and then diagnosed with Asperger's some years later by a renowned neurologist at UCLA. He has had immune and autoimmune issues from a fairly early age, along with a history of interruption during pregnancy (bleeding and influenza during first and second term), diarrhea as a toddler, frequent infections, autoimmune symptoms during those infections, ear infections, allergic response to amoxicillin, asthma, sinusitis, costochondritis, ITP for which he was treated with gamma globulin therapy (which resulted in increased platelet count but also in lessening of his "autistic characteristics" and an end to a daily cough that he had had for years prior to the gamma globulin therapy), Tourette's Syndrome (which started in his kindergarten year, the same year that he was his asthma symptoms became life-threatening and the same year that he received the standard series of kindergarten immunizations), and psychotic episodes (started within two weeks of receiving a flu vaccination w/no previous history before that vaccination). Family history includes toe-walking, schizophrenia, asthma, Tourette's, and death of a relative in WWII after he was immunized on a navel vessel.

4. Do you work in any field with people on the autism spectrum disorder? If so, what do you do? How long have you been in the field? Examples would be a doctor, therapist, teacher, aide, ym/wca employee, caregiver etc... Also, if you are local to the Tampa Bay Area, would you be interested in speaking at any of our informational support group meetings in Pinellas Park?

Answer: I have worked for school districts as a medical aid in Special Ed. Currently, I am pre-med as an undergrad, with the hope of beginning research on immune response/autoimmunity sometime this year or next. My career goal is neroimmunology or related area.

5. Are you local to the Tampa Bay Area? More specifically the Pinellas County area? If so, would you be interested in attending our twice monthly informational support group meetings in Pinellas Park? After approved, be sure to mark in your profile that you are local so that you will be able to receive emails regarding local information and events.

Answer: I live in Ventura County, California.

2Answers to questions asked Empty Re: Answers to questions asked on Tue May 19, 2009 5:39 am

bmiley


Does toe walking have anything to do with Asperger's? My son-in-law has ADD and is a toe walker and now my grandson at almost 3 is doing it too.

3Answers to questions asked Empty Re: Answers to questions asked on Tue May 19, 2009 12:07 pm

IWPerez


That's an interesting question. Around 2000, I was a part of a Tourette's Syndrome forum. At that time, I was curious about every nuance of Tourette's and related disorders. My son was a toe-walker, I was beginning to recall that my brother had had very tight hamstrings we were growing up, so tight that he could not sit on his haunches like most kids. And a Special Ed. teacher had had a conversation with me regarding the high frequency of tight leg/tendon tissues of many of the disabled children she had worked with. I already was familiar with the immune dysfunction of many children with neuro disorders by then, and was also familiar with the correlation between interruption during pregnancy (maternal bleeding/spotting during pregnancy) and autism. Also, not long after, research on PANDAS and research on flu during pregnancy leading to schizophrenia was being released. There was other data that my mind was beginning to collect, I won't trouble you with everything...but what I was beginning to wonder boiled down to this: Yes, genetics are at play. How important is the environment? If a person predisposed to immune dysfunction AND neuro disorders experiences a severe disruption during pregnancy, how many systems are affected? Is this a possible link between the nuero, immune, and musculoskeletal abnormalities (toe walking, etc.) we often see in children simultaneously who are primarily diagnosed with autism or Tourette's? I posed this question to a researcher from Yale in early 2000, and he confirmed that this was a possible explanation for the curious links between systems where we would not expect to see a link. I do not know how significant this idea would be, as I am certain that not all children who are toe walkers have autism or Tourette's, and certainly not all individuals with Tourette's or autism have come from a pregnancy with obvious interruption, yet enough data exists to inquire further.

4Answers to questions asked Empty Re: Answers to questions asked on Tue May 19, 2009 1:33 pm

bmiley


Provocative for sure. I'm keeping my eye on my grandson who is almost 3 because he isn't speaking well yet, not clearly but acts out what he wants to say. We're waiting for a speech assessment and it's a long wait. Sometimes he gets angry or maybe frustrated and starts throwing things around and at people.

5Answers to questions asked Empty Re: Answers to questions asked on Wed May 20, 2009 11:39 am

IWPerez


He is in good hands. You sound wonderful and supportive. With the knowledge that I have now, if I were to start again with another child with the same issues, I think I would have a lot more fun and worry a lot less. These are great kids, and the obstacles my sons overcame made much of the person that I am today. Enjoy, stay on top of things (as I know you are/will), and take lots of pictures. Time goes by so quickly Smile My well wishes go out to you.

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