American Asperger's Association Support Group

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» Chambers of Hope (COH) and American Aspergers Association (AAA)
Sat Jul 27, 2013 1:29 pm by csweepigirl

» Introductions
Mon Feb 06, 2012 12:39 am by earthenvessel

» June 4th 2011
Fri Feb 25, 2011 6:22 am by csweepigirl

» Free Home Speech Practice Home offer
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» Support group meeting and hbot volunteers
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» Favor....Locals..read..please...
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» Developmental Disabilities (AAIDD) is hosting the first of its best practices webinars
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» We need to start this website back up again!
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» Group Home Manager is Yelling I Need Help
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» Facebook
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» Support Group Meetings 2011 *EDITED*
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» community happenings!
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» Asperger's (how it is diagnosed and treated)
Sat Jun 12, 2010 4:27 pm by csweepigirl

» What do you do when people look at you by the pills you take vs. the person you are?
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» Items under your nose that are gluten free, and cheap too!
Wed Jun 09, 2010 5:59 am by KelleyNNelson

» Adam
Tue Jun 08, 2010 1:19 am by man of a million names

» Looking for friends
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» Maas-Rowe Carillon Questions
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» Video Emails from Dr. Ron
Tue May 11, 2010 1:40 am by Dr. Ron

» Ah, it's good to be back.
Sat May 01, 2010 5:03 am by man of a million names

» 1st Annual Aspergers Volleyball Tournament
Mon Apr 19, 2010 2:03 am by Dr. Ron

» free event: Therapeutic Recreation Adapted Sailing and Kayak Clinic
Thu Apr 01, 2010 3:20 am by csweepigirl

» Help! I Seem to be Getting More Autistic!" ARTICLE
Mon Mar 29, 2010 10:22 am by csweepigirl

» Was this teacher out of line?
Wed Mar 03, 2010 10:31 pm by lovethefish

» OMG THE PLACE IS REMODELED!!!!
Wed Mar 03, 2010 2:38 am by KelleyNNelson

» Got Plates?
Tue Mar 02, 2010 1:19 am by KelleyNNelson

» Local IEP Advocate!! THANKS VAL!!!
Sun Feb 28, 2010 1:16 pm by csweepigirl

» Pinellas ESE advisory board meetings
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» Dentists who use sedation.. thanks Dr. Ron
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» Hey GAB!!!!!!!!!!!!!!!!!
Wed Feb 24, 2010 5:25 am by csweepigirl

» Autism in the news: WASHINGTON (Reuters) - A hormone thought to encourage bonding between mothers and their babies may foster social behavior in some adults with autism, French researchers said on Monday.
Thu Feb 18, 2010 7:01 am by csweepigirl

» **********echo*******************
Sun Jan 31, 2010 11:16 pm by KelleyNNelson

» Any ideas on how to make a gluten regression easier for both child and family?
Wed Jan 06, 2010 9:47 am by csweepigirl

» Hi! Long time no see.
Mon Dec 21, 2009 3:04 am by KelleyNNelson

» Hellooooo? Need some freakin' help here.
Tue Dec 15, 2009 8:50 am by man of a million names

» Cats or dogs? Summer or winter?
Mon Nov 23, 2009 6:47 am by man of a million names

» Mozark and the whale *aspergers movie* on showtime on demand.. SUCKED by the way
Mon Nov 23, 2009 6:42 am by man of a million names

» Adult Aspergers Syndrome
Sun Nov 22, 2009 4:07 pm by KelleyNNelson

» Asperger’s Syndrome: A Developmental Puzzle by Michael McCroskery
Sun Nov 22, 2009 12:22 pm by csweepigirl

» Really Cool Super Awesome Thing! Kim And Kelly You Have To Read This!
Fri Nov 20, 2009 4:24 am by man of a million names

» 2 Articles of Interest Re: Aspergers
Thu Nov 19, 2009 6:15 am by csweepigirl

» Accidently stubled across some info about meletonin oops!
Tue Nov 10, 2009 2:41 pm by csweepigirl

» Lack of Services for ASD
Mon Nov 09, 2009 8:04 pm by Dr. Ron

» New and having a hard time
Wed Nov 04, 2009 3:40 am by lovethefish

» Sorry I haven't been around as much (update)
Tue Nov 03, 2009 10:53 pm by KelleyNNelson

» Having a hard time again
Tue Oct 20, 2009 8:35 am by man of a million names

» Important paradox/riddle! Anyone care to help with it?
Mon Oct 19, 2009 10:46 pm by KelleyNNelson

» Follow through or not.
Thu Oct 15, 2009 4:01 am by csweepigirl

» New Pediatrics Autism Study Putting Prevalence at 1 in 91
Wed Oct 14, 2009 11:45 am by csweepigirl

» Different Directions
Fri Oct 09, 2009 12:41 am by csweepigirl

» AS is a very difficult diagnosis to make.
Thu Oct 08, 2009 1:47 pm by csweepigirl

» How is everyone?
Mon Sep 21, 2009 9:48 pm by Jerry Graham

» CD to benefit the AAA ~!!!!! Check this out!!
Mon Sep 21, 2009 11:14 am by bassfiddlesteve

» I met Joe Diffie's son!
Sun Sep 20, 2009 8:01 am by csweepigirl

» Anyone feel like helping me smack the crap out of my former boss?
Sun Sep 20, 2009 7:56 am by csweepigirl

» Lazy or Aspergers?? or both?
Sun Sep 20, 2009 5:20 am by man of a million names

» The right thing?
Tue Sep 15, 2009 7:27 am by man of a million names

» Mark Fowler and his wonderful work.
Sun Sep 13, 2009 5:51 am by man of a million names

» A.A.A. RESEARCH STUDY. Do you see any differences between females with Aspergers vs. males with Aspergers
Thu Sep 10, 2009 1:49 pm by csweepigirl

» What happened?? because I don't know, do you?
Thu Sep 10, 2009 6:24 am by man of a million names

» Haha, Funny URL.
Wed Sep 09, 2009 9:15 am by man of a million names

» Dude! Kim, I forgot to tell you... and maybe anyone else at the last meeting...
Sat Sep 05, 2009 4:59 am by man of a million names

» My son is making strange noises!
Fri Sep 04, 2009 11:41 pm by KelleyNNelson

» Terrible sound on video
Fri Sep 04, 2009 9:30 am by man of a million names

» Aspian or Aspergian?
Fri Sep 04, 2009 7:22 am by man of a million names

» If you, or you know someone who needs a BIG/HUGE carseat..
Fri Sep 04, 2009 12:33 am by csweepigirl

» Just a quick hello
Wed Sep 02, 2009 7:37 am by man of a million names

» We started the FLDRS process...and here's what we found out so far
Wed Sep 02, 2009 7:19 am by man of a million names

» Support Groups
Sun Aug 30, 2009 1:31 pm by KelleyNNelson

» (Aspergers) Boy Meets Girl Movie
Tue Aug 25, 2009 8:13 am by man of a million names

» I give up, with trying to ever just relax, really.. I'm so flustrated!
Mon Aug 24, 2009 9:15 am by man of a million names

» Basic White or Yellow Cake
Sat Aug 22, 2009 6:33 am by man of a million names

» When did this category get here?
Sat Aug 22, 2009 1:55 am by man of a million names

» Pork Fried Rice
Thu Aug 20, 2009 11:17 pm by man of a million names

» Why Are The Private Messages Still Disabled????
Thu Aug 20, 2009 10:48 pm by man of a million names

» Sorry I've been M.I.A.
Wed Aug 19, 2009 6:04 am by man of a million names

» 5Km Run For AS!
Fri Aug 14, 2009 11:30 pm by man of a million names

» Help for a mother.
Wed Aug 12, 2009 12:01 pm by Dr. Ron

» Aspergers and empathy
Sat Aug 08, 2009 11:41 am by csweepigirl

» We are the three amigo(a)s!Aanyone care to join?
Fri Aug 07, 2009 12:42 am by man of a million names

» Vaccinations, Red Book, What?
Thu Aug 06, 2009 12:21 am by Dr. Ron

» What is the first step?
Wed Aug 05, 2009 7:14 am by Dr. Ron

» Children who can’t cuddle
Mon Aug 03, 2009 1:27 pm by csweepigirl

» Challenging popular myths about autism
Fri Jul 31, 2009 10:59 pm by Dr. Ron

» I NEED your HELP!!
Sat Jul 25, 2009 2:41 am by melissa

» Ok..what do I do? any suggestions..
Fri Jul 24, 2009 3:53 am by melissa

» Back home!
Wed Jul 22, 2009 2:10 pm by KelleyNNelson

» Any spanish speakers willing to help an aspie in spain?
Wed Jul 22, 2009 1:34 pm by csweepigirl

» Gluten Free Simple Bread
Tue Jul 21, 2009 11:49 am by csweepigirl

» More research (genetics)
Tue Jul 21, 2009 11:43 am by csweepigirl


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Answers to questions asked

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1 Answers to questions asked on Mon May 18, 2009 11:40 pm

IWPerez


1. How did you hear about the American Asperger's Association (i.e. internet search engine, school, library, doctors office, existing member, etc) and what benefits are you looking to gain from our family?

Answer: Your video commentating on a Larry King Live show (subject: autism-vaccination debate) was listed on YouTube, along with the segments of that show. I was pleasantly surprised to find that your organization sides with Dr. Bernadine Healy and those who feel that the question needs to be explored further.

2. Do you or any adult relative, friend, etc. have or suspect you/they have an autism spectrum disorder, for example Asperger's Syndrome? If yes, please share your/their story with us. It will help us to get to know you better, and many of our members will be able to easily relate and bond with you.

Answer: I do not have Asperger's, though I may have had mild characteristics of Asperger's as a child (undiagnosed). I have known adults or soon-to-be adults who have Aperger's, but that is not the reason for my interest in the subject.

3. Do you have or care for a child that has or you suspect that they have an autism spectrum disorder, for example Asperger's Syndrome? If yes, please share your/their story with us. It will help us to get to know you better, and many of our members will be able to easily relate with and bond with you.

Answer: My son was diagnosed with PDD-NOS by a neurologist in 1996, and then diagnosed with Asperger's some years later by a renowned neurologist at UCLA. He has had immune and autoimmune issues from a fairly early age, along with a history of interruption during pregnancy (bleeding and influenza during first and second term), diarrhea as a toddler, frequent infections, autoimmune symptoms during those infections, ear infections, allergic response to amoxicillin, asthma, sinusitis, costochondritis, ITP for which he was treated with gamma globulin therapy (which resulted in increased platelet count but also in lessening of his "autistic characteristics" and an end to a daily cough that he had had for years prior to the gamma globulin therapy), Tourette's Syndrome (which started in his kindergarten year, the same year that he was his asthma symptoms became life-threatening and the same year that he received the standard series of kindergarten immunizations), and psychotic episodes (started within two weeks of receiving a flu vaccination w/no previous history before that vaccination). Family history includes toe-walking, schizophrenia, asthma, Tourette's, and death of a relative in WWII after he was immunized on a navel vessel.

4. Do you work in any field with people on the autism spectrum disorder? If so, what do you do? How long have you been in the field? Examples would be a doctor, therapist, teacher, aide, ym/wca employee, caregiver etc... Also, if you are local to the Tampa Bay Area, would you be interested in speaking at any of our informational support group meetings in Pinellas Park?

Answer: I have worked for school districts as a medical aid in Special Ed. Currently, I am pre-med as an undergrad, with the hope of beginning research on immune response/autoimmunity sometime this year or next. My career goal is neroimmunology or related area.

5. Are you local to the Tampa Bay Area? More specifically the Pinellas County area? If so, would you be interested in attending our twice monthly informational support group meetings in Pinellas Park? After approved, be sure to mark in your profile that you are local so that you will be able to receive emails regarding local information and events.

Answer: I live in Ventura County, California.

2 Re: Answers to questions asked on Tue May 19, 2009 5:39 am

bmiley


Does toe walking have anything to do with Asperger's? My son-in-law has ADD and is a toe walker and now my grandson at almost 3 is doing it too.

3 Re: Answers to questions asked on Tue May 19, 2009 12:07 pm

IWPerez


That's an interesting question. Around 2000, I was a part of a Tourette's Syndrome forum. At that time, I was curious about every nuance of Tourette's and related disorders. My son was a toe-walker, I was beginning to recall that my brother had had very tight hamstrings we were growing up, so tight that he could not sit on his haunches like most kids. And a Special Ed. teacher had had a conversation with me regarding the high frequency of tight leg/tendon tissues of many of the disabled children she had worked with. I already was familiar with the immune dysfunction of many children with neuro disorders by then, and was also familiar with the correlation between interruption during pregnancy (maternal bleeding/spotting during pregnancy) and autism. Also, not long after, research on PANDAS and research on flu during pregnancy leading to schizophrenia was being released. There was other data that my mind was beginning to collect, I won't trouble you with everything...but what I was beginning to wonder boiled down to this: Yes, genetics are at play. How important is the environment? If a person predisposed to immune dysfunction AND neuro disorders experiences a severe disruption during pregnancy, how many systems are affected? Is this a possible link between the nuero, immune, and musculoskeletal abnormalities (toe walking, etc.) we often see in children simultaneously who are primarily diagnosed with autism or Tourette's? I posed this question to a researcher from Yale in early 2000, and he confirmed that this was a possible explanation for the curious links between systems where we would not expect to see a link. I do not know how significant this idea would be, as I am certain that not all children who are toe walkers have autism or Tourette's, and certainly not all individuals with Tourette's or autism have come from a pregnancy with obvious interruption, yet enough data exists to inquire further.

4 Re: Answers to questions asked on Tue May 19, 2009 1:33 pm

bmiley


Provocative for sure. I'm keeping my eye on my grandson who is almost 3 because he isn't speaking well yet, not clearly but acts out what he wants to say. We're waiting for a speech assessment and it's a long wait. Sometimes he gets angry or maybe frustrated and starts throwing things around and at people.

5 Re: Answers to questions asked on Wed May 20, 2009 11:39 am

IWPerez


He is in good hands. You sound wonderful and supportive. With the knowledge that I have now, if I were to start again with another child with the same issues, I think I would have a lot more fun and worry a lot less. These are great kids, and the obstacles my sons overcame made much of the person that I am today. Enjoy, stay on top of things (as I know you are/will), and take lots of pictures. Time goes by so quickly Smile My well wishes go out to you.

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