American Asperger's Association Support Group

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» Introductions
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» June 4th 2011
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» Free Home Speech Practice Home offer
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» Support group meeting and hbot volunteers
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» Favor....Locals..read..please...
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» Developmental Disabilities (AAIDD) is hosting the first of its best practices webinars
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» We need to start this website back up again!
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» Group Home Manager is Yelling I Need Help
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» Facebook
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» Support Group Meetings 2011 *EDITED*
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» community happenings!
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» Asperger's (how it is diagnosed and treated)
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» What do you do when people look at you by the pills you take vs. the person you are?
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» Items under your nose that are gluten free, and cheap too!
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» Adam
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» Looking for friends
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» Maas-Rowe Carillon Questions
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» Video Emails from Dr. Ron
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» Ah, it's good to be back.
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» 1st Annual Aspergers Volleyball Tournament
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» free event: Therapeutic Recreation Adapted Sailing and Kayak Clinic
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» Help! I Seem to be Getting More Autistic!" ARTICLE
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» Was this teacher out of line?
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» OMG THE PLACE IS REMODELED!!!!
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» Got Plates?
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» Local IEP Advocate!! THANKS VAL!!!
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» Pinellas ESE advisory board meetings
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» Dentists who use sedation.. thanks Dr. Ron
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» Hey GAB!!!!!!!!!!!!!!!!!
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» Autism in the news: WASHINGTON (Reuters) - A hormone thought to encourage bonding between mothers and their babies may foster social behavior in some adults with autism, French researchers said on Monday.
Neurodiversity I_icon_minitimeThu Feb 18, 2010 7:01 am by csweepigirl

» **********echo*******************
Neurodiversity I_icon_minitimeSun Jan 31, 2010 11:16 pm by KelleyNNelson

» Any ideas on how to make a gluten regression easier for both child and family?
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» Hi! Long time no see.
Neurodiversity I_icon_minitimeMon Dec 21, 2009 3:04 am by KelleyNNelson

» Hellooooo? Need some freakin' help here.
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» Cats or dogs? Summer or winter?
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» Mozark and the whale *aspergers movie* on showtime on demand.. SUCKED by the way
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» Adult Aspergers Syndrome
Neurodiversity I_icon_minitimeSun Nov 22, 2009 4:07 pm by KelleyNNelson

» Asperger’s Syndrome: A Developmental Puzzle by Michael McCroskery
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» Really Cool Super Awesome Thing! Kim And Kelly You Have To Read This!
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» 2 Articles of Interest Re: Aspergers
Neurodiversity I_icon_minitimeThu Nov 19, 2009 6:15 am by csweepigirl

» Accidently stubled across some info about meletonin oops!
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» Lack of Services for ASD
Neurodiversity I_icon_minitimeMon Nov 09, 2009 8:04 pm by Dr. Ron

» New and having a hard time
Neurodiversity I_icon_minitimeWed Nov 04, 2009 3:40 am by lovethefish

» Sorry I haven't been around as much (update)
Neurodiversity I_icon_minitimeTue Nov 03, 2009 10:53 pm by KelleyNNelson

» Having a hard time again
Neurodiversity I_icon_minitimeTue Oct 20, 2009 8:35 am by man of a million names

» Important paradox/riddle! Anyone care to help with it?
Neurodiversity I_icon_minitimeMon Oct 19, 2009 10:46 pm by KelleyNNelson

» Follow through or not.
Neurodiversity I_icon_minitimeThu Oct 15, 2009 4:01 am by csweepigirl

» New Pediatrics Autism Study Putting Prevalence at 1 in 91
Neurodiversity I_icon_minitimeWed Oct 14, 2009 11:45 am by csweepigirl

» Different Directions
Neurodiversity I_icon_minitimeFri Oct 09, 2009 12:41 am by csweepigirl

» AS is a very difficult diagnosis to make.
Neurodiversity I_icon_minitimeThu Oct 08, 2009 1:47 pm by csweepigirl

» How is everyone?
Neurodiversity I_icon_minitimeMon Sep 21, 2009 9:48 pm by Jerry Graham

» CD to benefit the AAA ~!!!!! Check this out!!
Neurodiversity I_icon_minitimeMon Sep 21, 2009 11:14 am by bassfiddlesteve

» I met Joe Diffie's son!
Neurodiversity I_icon_minitimeSun Sep 20, 2009 8:01 am by csweepigirl

» Anyone feel like helping me smack the crap out of my former boss?
Neurodiversity I_icon_minitimeSun Sep 20, 2009 7:56 am by csweepigirl

» Lazy or Aspergers?? or both?
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» The right thing?
Neurodiversity I_icon_minitimeTue Sep 15, 2009 7:27 am by man of a million names

» Mark Fowler and his wonderful work.
Neurodiversity I_icon_minitimeSun Sep 13, 2009 5:51 am by man of a million names

» A.A.A. RESEARCH STUDY. Do you see any differences between females with Aspergers vs. males with Aspergers
Neurodiversity I_icon_minitimeThu Sep 10, 2009 1:49 pm by csweepigirl

» What happened?? because I don't know, do you?
Neurodiversity I_icon_minitimeThu Sep 10, 2009 6:24 am by man of a million names

» Haha, Funny URL.
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» Dude! Kim, I forgot to tell you... and maybe anyone else at the last meeting...
Neurodiversity I_icon_minitimeSat Sep 05, 2009 4:59 am by man of a million names

» My son is making strange noises!
Neurodiversity I_icon_minitimeFri Sep 04, 2009 11:41 pm by KelleyNNelson

» Terrible sound on video
Neurodiversity I_icon_minitimeFri Sep 04, 2009 9:30 am by man of a million names

» Aspian or Aspergian?
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» If you, or you know someone who needs a BIG/HUGE carseat..
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» Just a quick hello
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» We started the FLDRS process...and here's what we found out so far
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» Support Groups
Neurodiversity I_icon_minitimeSun Aug 30, 2009 1:31 pm by KelleyNNelson

» (Aspergers) Boy Meets Girl Movie
Neurodiversity I_icon_minitimeTue Aug 25, 2009 8:13 am by man of a million names

» I give up, with trying to ever just relax, really.. I'm so flustrated!
Neurodiversity I_icon_minitimeMon Aug 24, 2009 9:15 am by man of a million names

» Basic White or Yellow Cake
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» When did this category get here?
Neurodiversity I_icon_minitimeSat Aug 22, 2009 1:55 am by man of a million names

» Pork Fried Rice
Neurodiversity I_icon_minitimeThu Aug 20, 2009 11:17 pm by man of a million names

» Why Are The Private Messages Still Disabled????
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» Sorry I've been M.I.A.
Neurodiversity I_icon_minitimeWed Aug 19, 2009 6:04 am by man of a million names

» 5Km Run For AS!
Neurodiversity I_icon_minitimeFri Aug 14, 2009 11:30 pm by man of a million names

» Help for a mother.
Neurodiversity I_icon_minitimeWed Aug 12, 2009 12:01 pm by Dr. Ron

» Aspergers and empathy
Neurodiversity I_icon_minitimeSat Aug 08, 2009 11:41 am by csweepigirl

» We are the three amigo(a)s!Aanyone care to join?
Neurodiversity I_icon_minitimeFri Aug 07, 2009 12:42 am by man of a million names

» Vaccinations, Red Book, What?
Neurodiversity I_icon_minitimeThu Aug 06, 2009 12:21 am by Dr. Ron

» What is the first step?
Neurodiversity I_icon_minitimeWed Aug 05, 2009 7:14 am by Dr. Ron

» Children who can’t cuddle
Neurodiversity I_icon_minitimeMon Aug 03, 2009 1:27 pm by csweepigirl

» Challenging popular myths about autism
Neurodiversity I_icon_minitimeFri Jul 31, 2009 10:59 pm by Dr. Ron

» I NEED your HELP!!
Neurodiversity I_icon_minitimeSat Jul 25, 2009 2:41 am by melissa

» Ok..what do I do? any suggestions..
Neurodiversity I_icon_minitimeFri Jul 24, 2009 3:53 am by melissa

» Back home!
Neurodiversity I_icon_minitimeWed Jul 22, 2009 2:10 pm by KelleyNNelson

» Any spanish speakers willing to help an aspie in spain?
Neurodiversity I_icon_minitimeWed Jul 22, 2009 1:34 pm by csweepigirl

» Gluten Free Simple Bread
Neurodiversity I_icon_minitimeTue Jul 21, 2009 11:49 am by csweepigirl

» More research (genetics)
Neurodiversity I_icon_minitimeTue Jul 21, 2009 11:43 am by csweepigirl


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Neurodiversity

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1Neurodiversity Empty Neurodiversity on Thu Jun 04, 2009 7:55 am

csweepigirl

csweepigirl
Admin
The Kender (neko_no_baka) wrote,
@ 2009-05-28 15:40:00





On Neurodiversity
I want to talk a little about Neurodiversity, at least, what it means to me.
This is something that I particularly want parents with newly diagnosed autistic children, of any age, to understand.

What Neurodiversity is:
take the two roots of the word, Neuro and diversity.
Neuro, standing for Neurological, basically, the brain.
Diversity: "1. the state or fact of being diverse; difference; unlikeness. 2. variety; multiformity. 3. a point of difference." (http://dictionary.reference.com)

In other words, the diversity of the brain. In Anthropology, there is no one normal human society and culture. We have the same needs, but different ways of getting support and the form of those needs. We think differently depending on our culture and society, our environment. We also think differently because our brains aren't all the same. What Neurodiversity is about is to accept that there is no normal brain, that being different is okay, and to work together to discover how we all can participate to the best of our abilities in our lives.

We've been depicted as an overly-positive movement, determined to make everything about being autistic as good and okay. While yes, we are zealous in our efforts to promote the positive sides of autism and to convince the public that autism isn't a scary soul-stealing disease, we also understand that it's TOUGH parenting an autistic. It's tough parenting/teaching a NT child as it is; it's extremely tough to parent/teach one of us. So yeah, we realize it's not all sunshine and roses. But hear us out when we say it's not all misery and that we don't want to focus on negative aspects, but think positively about ourselves.

And yeah, we're not your child/student. To be frank, NO ONE is. But we've BEEN there. We STILL ARE. It might just be that we can help to understand and support, even give aid. After all, even though we all have had different experiences, we think and respond very similar.

I've seen parents claim that we are a movement of only Aspergereans/"high functioning" autistics who cannot possibly relate to their "poor low-functioning" child (direct quote, actually). This is not true. ASD is a spectrum disorder and it's a developmental disorder. This means that there is an extremely wide range of abilities and disabilities. This also means that we develop differently than what is typical. The development of our skills can come slowly and may need some help. Childhood is the time when we LEARN the most, after all. But none of us are STATIC.
This means that many of us who once were labeled as "low-functioning" developed skills and became "high-functioning". As we grow, we develop. There are also many reasons for what is perceived as fluctuating "functionality", or "regressing" and becoming "more autistic". (More info here)

So to repeat myself, we WERE there. And we'd like to help.

It may be optimistic of us, but we believe that with the proper supports and accommodations, as well as positive attitudes, acceptance, inclusion and encouragement, that every autistic person is able to communicate, interact and contribute to society while meeting individual needs and respecting one's sense of self.

This isn't to say that getting to these goals for everyone won't be hard. But we think it's better than the alternative view of seeing ourselves as defective, diseased or broken. Many of us don't like to be labeled as Low/High Functioning. It's comparing us to each other, which really isn't a good way since we all develop and grow separately. It's also harmful to our self-esteem, as it puts a limiting label on us. It makes us feel like we have to compete in order to be worth anything, or that we won't ever be anything more than the label. When the latter happens, it's a self-fulfilling prophecy.

One last point; some have argued that Neurodiversity is about just us, and is not about "the rest" of autistic people. Mainly, the children who are labeled as low functioning. I think this is because parents, teachers and caregivers see us as "high functioning" or at a level where we don't need supports. This isn't true. Life is not a matter of static levels, where things remain the same once you get to a certain point. Life changes, and even though we dislike it, we are all too aware about the changes that life takes us.

But the point is this; think of us as your children that have come before, who have faced and been subjected to the past and present treatments and therapies. Or those who have slipped through the cracks of the medical community. Many of us have faced bullying, neglect, incorrect treatments, misdiagnosis, and various forms of abuse. Yes, we feel pain and want to lash out at those who hurt us. But not at your children. If anything, what we want is that what happened to us does not happen to your children.

And so, nothing about us, without us. All of us.

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