American Asperger's Association Support Group

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» June 4th 2011
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» Favor....Locals..read..please...
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» Developmental Disabilities (AAIDD) is hosting the first of its best practices webinars
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» We need to start this website back up again!
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» Support Group Meetings 2011 *EDITED*
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» community happenings!
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» Asperger's (how it is diagnosed and treated)
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» What do you do when people look at you by the pills you take vs. the person you are?
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» Items under your nose that are gluten free, and cheap too!
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» Adam
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» Looking for friends
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» Maas-Rowe Carillon Questions
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» Video Emails from Dr. Ron
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» Ah, it's good to be back.
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» 1st Annual Aspergers Volleyball Tournament
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» free event: Therapeutic Recreation Adapted Sailing and Kayak Clinic
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» Help! I Seem to be Getting More Autistic!" ARTICLE
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» Was this teacher out of line?
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» OMG THE PLACE IS REMODELED!!!!
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» Got Plates?
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» Local IEP Advocate!! THANKS VAL!!!
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» Pinellas ESE advisory board meetings
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» Dentists who use sedation.. thanks Dr. Ron
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» Hey GAB!!!!!!!!!!!!!!!!!
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» Autism in the news: WASHINGTON (Reuters) - A hormone thought to encourage bonding between mothers and their babies may foster social behavior in some adults with autism, French researchers said on Monday.
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» **********echo*******************
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» Any ideas on how to make a gluten regression easier for both child and family?
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» Hi! Long time no see.
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» Hellooooo? Need some freakin' help here.
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» Cats or dogs? Summer or winter?
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» Mozark and the whale *aspergers movie* on showtime on demand.. SUCKED by the way
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» Adult Aspergers Syndrome
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» Asperger’s Syndrome: A Developmental Puzzle by Michael McCroskery
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» Really Cool Super Awesome Thing! Kim And Kelly You Have To Read This!
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» 2 Articles of Interest Re: Aspergers
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» Accidently stubled across some info about meletonin oops!
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» Lack of Services for ASD
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» New and having a hard time
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» Sorry I haven't been around as much (update)
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» Having a hard time again
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» Important paradox/riddle! Anyone care to help with it?
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» Follow through or not.
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» New Pediatrics Autism Study Putting Prevalence at 1 in 91
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» Different Directions
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» AS is a very difficult diagnosis to make.
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» How is everyone?
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» CD to benefit the AAA ~!!!!! Check this out!!
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» I met Joe Diffie's son!
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» Anyone feel like helping me smack the crap out of my former boss?
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» Lazy or Aspergers?? or both?
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» The right thing?
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» Mark Fowler and his wonderful work.
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» A.A.A. RESEARCH STUDY. Do you see any differences between females with Aspergers vs. males with Aspergers
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» What happened?? because I don't know, do you?
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» Haha, Funny URL.
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» Dude! Kim, I forgot to tell you... and maybe anyone else at the last meeting...
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» My son is making strange noises!
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» Terrible sound on video
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» Aspian or Aspergian?
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» If you, or you know someone who needs a BIG/HUGE carseat..
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» Just a quick hello
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» We started the FLDRS process...and here's what we found out so far
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» Support Groups
Introductions I_icon_minitimeSun Aug 30, 2009 1:31 pm by KelleyNNelson

» (Aspergers) Boy Meets Girl Movie
Introductions I_icon_minitimeTue Aug 25, 2009 8:13 am by man of a million names

» I give up, with trying to ever just relax, really.. I'm so flustrated!
Introductions I_icon_minitimeMon Aug 24, 2009 9:15 am by man of a million names

» Basic White or Yellow Cake
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» When did this category get here?
Introductions I_icon_minitimeSat Aug 22, 2009 1:55 am by man of a million names

» Pork Fried Rice
Introductions I_icon_minitimeThu Aug 20, 2009 11:17 pm by man of a million names

» Why Are The Private Messages Still Disabled????
Introductions I_icon_minitimeThu Aug 20, 2009 10:48 pm by man of a million names

» Sorry I've been M.I.A.
Introductions I_icon_minitimeWed Aug 19, 2009 6:04 am by man of a million names

» 5Km Run For AS!
Introductions I_icon_minitimeFri Aug 14, 2009 11:30 pm by man of a million names

» Help for a mother.
Introductions I_icon_minitimeWed Aug 12, 2009 12:01 pm by Dr. Ron

» Aspergers and empathy
Introductions I_icon_minitimeSat Aug 08, 2009 11:41 am by csweepigirl

» We are the three amigo(a)s!Aanyone care to join?
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» Vaccinations, Red Book, What?
Introductions I_icon_minitimeThu Aug 06, 2009 12:21 am by Dr. Ron

» What is the first step?
Introductions I_icon_minitimeWed Aug 05, 2009 7:14 am by Dr. Ron

» Children who can’t cuddle
Introductions I_icon_minitimeMon Aug 03, 2009 1:27 pm by csweepigirl

» Challenging popular myths about autism
Introductions I_icon_minitimeFri Jul 31, 2009 10:59 pm by Dr. Ron

» I NEED your HELP!!
Introductions I_icon_minitimeSat Jul 25, 2009 2:41 am by melissa

» Ok..what do I do? any suggestions..
Introductions I_icon_minitimeFri Jul 24, 2009 3:53 am by melissa

» Back home!
Introductions I_icon_minitimeWed Jul 22, 2009 2:10 pm by KelleyNNelson

» Any spanish speakers willing to help an aspie in spain?
Introductions I_icon_minitimeWed Jul 22, 2009 1:34 pm by csweepigirl

» Gluten Free Simple Bread
Introductions I_icon_minitimeTue Jul 21, 2009 11:49 am by csweepigirl

» More research (genetics)
Introductions I_icon_minitimeTue Jul 21, 2009 11:43 am by csweepigirl


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Introductions

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1Introductions Empty Introductions on Fri Mar 13, 2009 12:11 pm

csweepigirl

csweepigirl
Admin
I'll start. My name is Kim, I'm 29, married, and we have a 2
almost 3 year old daughter. If you have any questions about the
forum, I'm the one to contact, either on here, or email me
fapprez@msn.com I look forward to chatting with you all on here.
I'm not too good at chatting in person yet, it's a work in progress..
I'm on the computer ALOT so feel free to contact me anytime. If
you want to know anything else, just ask.. I'm an open book and
don't mind answering questions. If you are new here, just click
"Post reply" to reply to a post, like this one LOL.. or click
"post new" to start a post. Feel free to post whatever is on
your mind, articles, anything you want. Hope you all enjoy it
here! Kim



Last edited by csweepigirl on Sun May 17, 2009 7:37 am; edited 1 time in total

2Introductions Empty Re: Introductions on Sat Mar 14, 2009 6:04 am

KelleyNNelson

KelleyNNelson
Admin
Hi, I'm Kelley, I'm 30 and I'm married to Colin, who's 32. My son is Richard... he just turned 5 on the 12th of March. He has had a Dx of "mild" autism for about 1 1/2 years now, but has been in the "system" since he was about 18 months old, originally diagnosed as severely speech delayed and then simply as developmentally delayed before the autistic diagnosis. We've been through just about every evaluation and every procedure with the Florida system whether it's Early Steps, Early Intervention, FDLRS, the school system... pretty much you name it, we've been through it so far. So if you have any questions about anything like that, we can probably help you out. We are also gluten free... well, at least Richard is, so we have at least a fair amount of info on that as well. Richard is in speech and occupational therapy, although admittedly I know a great deal more about speech therapies than occupational since we've been working on his speech for so much longer. But we're learning a great deal about the other, and I find it terribly interesting. With all we've been through, I've been pretty interested lately in possibly going back into school to become an ESE early education teacher, but we'll see when and if that happens.

So yeah, that's us! Hope to meet some more of you soon!

BradB


Hello everyone, I'm Brad, 42, living in St. Petersburg. I first learned about Asperger's in about 1997. I have not been formally diagnosed (I asked a therapist about it in 1997, and he had never even heard of Asperger's), but based on what I've read, I'm convinced I have it. I find conventional work situations very difficult, which is why I find myself currently unemployed. I'm taking online courses in web design and market research. I'm hoping these courses will make me more marketable to employers.

My "obsessive" interests have changed some over the years, but I've always been a Star Trek fan, I've always enjoyed movies, and I've always enjoyed photography - digital technology has allowed me to pursue photography more. And I'm a dog lover; I've done some foster work for local dog rescue groups. I find it difficult to maintain friendships, so I've always had a small social network and for my entire adult life I've suffered varying degrees of depression.

There you have it! I hope everyone is having a great week.

4Introductions Empty Re: Introductions on Thu May 07, 2009 10:55 pm

Sarah


Guest
Brad, I too have wondered if I have Asperger's. I think all I have is a mild case of OCD. It used to be really bad when I was a child, I had to count and touch things "evenly", if I bumped my right elbow, I would have to bum the left, ect. I made myself stop. I was diagnosed with narcolepsy, so I take adderally now to stay awae, and I find it's making my OCD come creeping back, but I can keep it down to a minimum. I work in a medical laboratory, and I have found my attention to detail and obsession over learning about medical condiitions to have really helped me in my career. In fact, a lot of people that work in laboratories are different in some way, I think over 50% have at least mild OCD and many of us have some social issues. You might want to look into that.

My son is 3 years old. He was born 12 weeks premature due to a birth defect where his intestine ruptured. He was in the NICU for 94 days. He developed dysphagia with silent aspiration at 16 months when I weaned him from breastfeeding. He developed 6 food allergies, but he grew out of some, now he is down to 2. We were told he should grow out of his "preemie" developmental delays by age 2, but that wasn't to be. He is a year delayed in speech, and motor skills, and requires thickener to drink safely. He also has has chronic sinusitis and ear infection, which cause temporary hearing loss contributing to his speech delay. ONe day a few months ago he got a high fever and I started noticing he was stopping and his eyes would roll back. The first time I didn't make much of it, but it happed 5 times that day. When I took him to his ENT for that ear infection, he referred my son to a neurologist. Turns out after extensive testing he has absence epilepsy. The neuro said the constant "blackouts" may be contributing to his delay, so we started him on Zarontin. He has been acting out for a year now, first it was hitting. Now for the past few months he has been biting. He got kicked out of 2 daycare centers (the ones who only take "perfect" children). Weird, they only had well off white kids at those centers. Obviously they didn't want anyone different. They bitched about the special food and drinks, and hitting was the last straw. His b-day is in January, which is when he left early steps to go into an EELP program. He has made huge progress in his speech, and now instead of just naming things, he actually uses some sentences. I don't like my son's neurologist. I am thinking of transferring him to my neurologist, who happens to be an epileptologist, and finding a better pediatric neuro for him. Any suggestions of a good neuro would be helpful. He also just got diagnosed with eosinophilic esophagitis, which is where you esophagus kinda gets ulcers from the food you eat that you are allergic to and is painful. Now we have to find out what other food he is allergic to that he is not testing positive for with the standard tests.

My son has been screened for autism countless times, but always tested negative. But he does share some similarities, food allergies, epilepsy, speech delay, and stereotypity(sp?). He is obsessed with train gates, not trains, just the actual gate, and he sometimes whips his head side to side when excited. His new pediatrician says his is too delayed for just being a preemie, something else is going on. He is very social, cuddly, and will make eye contact. Severe allergy and autoimmune conditions are huge on my side of the family. My mom, sis and I have narcolepsy, which is autoimmune, and I also have interstitial cystitis which is autoimmune. Myself, my son and my mom have severe allergies, we are allergic to almost everything they test us for, though he is the first with food allergy. Epilepsy is also thought to be possibly autoimmune. So is autism. Something to think about.

My son has many diagnoses, but nothing to connect the dots. Maybe the trauma of being hospitalized, having 3 surgeries on his intestines, 2 surgeries on his ears, tonsils adenoids and sinuses (a third sinus and ear surgery is scheduled for this month), just not being able to hear half the time, the pain from his esophagus, ears and sinuses, and the constant blackouts from the seizures are just too much for him, causing him to act out. As I was typing this, I got a call from the principal at his EELP school that he just bit a kid and we have to go pick him up. Ugg!!! I don't know what to do with him, he seems on the outside to be fine.

5Introductions Empty Re: Introductions on Thu May 07, 2009 11:02 pm

Sarah


Guest
Anyone who wants to contact me can email me sreagan at kent.edu

6Introductions Empty What a great idea!! on Fri May 08, 2009 4:16 am

Guest


Guest
My name is Heather, My fiance is Kenny, daughter is Ava. We are in our late 20's and our 3 year old daughter was diagnosed as PDD-NOS (Pervasive Developmental Disorder)
As some professionals say, this is just a stepping stone diagnosis until they know more when she is 5. I can still see why they link it to the autism spectrum being that she has some maneurisms(sp) and other charcteristics of autism. All very mild. I am a research fanatic, and have been through the "system" as well (FDLRS Early Steps Audiology and etc...) so if anyone has any questions they can contact me as well. I would be glad to help out as much as I can.
Take care all!! sunny

7Introductions Empty Re: Introductions on Tue May 12, 2009 2:55 am

Sarah


Guest
There is a school for autistics in Tampa, I am trying to get my son diagnosed with SPD and he posibly has PDD, definately the SPD. I thkin he could be helped by that school. since he is 3, the only other thing I know of is EELP, and that doesn't work for him.

8Introductions Empty Re: Introductions on Tue May 12, 2009 12:09 pm

csweepigirl

csweepigirl
Admin
Heather72 wrote:My name is Heather, My fiance is Kenny, daughter is Ava. We are in our late 20's and our 3 year old daughter was diagnosed as PDD-NOS (Pervasive Developmental Disorder)
As some professionals say, this is just a stepping stone diagnosis until they know more when she is 5. I can still see why they link it to the autism spectrum being that she has some maneurisms(sp) and other charcteristics of autism. All very mild. I am a research fanatic, and have been through the "system" as well (FDLRS Early Steps Audiology and etc...) so if anyone has any questions they can contact me as well. I would be glad to help out as much as I can.
Take care all!! sunny

What developmental ped do you see? I'm in search of one, since Dr. Murphey does not take my daughters insurance. My daughters symptoms are very mild also, one wouldn't know automatically there was an issue, unless they were around her for a full day if you know what I mean. Also, what "symptoms" does Ava have, just trying to see if there are any similarities between her and Kailey. Kailey's symptoms are all in the hbot journal on here. Thanks

9Introductions Empty Re: Introductions on Sun Jul 19, 2009 5:30 am

melissa


Hi, my name is Melissa. My brother, Doug, was diagnosed with Aspergers about 6 years ago at the age of 21. Doug is a wonderful brother. I have 4 kids and he is great with them. We love having him around, but I want him to be able to move on. He dropped out of Jr. College twice. He has had a few small jobs pushing carts or driving cars for dealers. Currently he does not have a job. He loves the weather, basketball statistics, and video games. I would love to fing him a job in an area he loves, but without a college degree it seems hopeless. Doug has finally decided that he does not want to grow old alone, but he shuts down if he even sees a girl his age. How can I help him overcome these hurdles?

10Introductions Empty Re: Introductions on Tue Oct 27, 2009 3:17 am

lovethefish


Hello. My name is Heide, 29, married to Bobby, 31. We have 4 amazing kiddo's. Joey-10, Josh-8, Danny-7, and Abby-2. Josh has a fairly long history of ADHD which I think all comes back to that he has Asperger's with ADHD and anxiety.

We live in Pinellas. We were seeing a doctor down at All Children's but recently had the pleasure of seeing Dr. Knaus.

11Introductions Empty Introduction on Tue Nov 03, 2009 11:11 pm

snb79


Hello, my name is Stacey and I have a 7 year old son that has Asperger's. He was first diagnosed with ODD and ADHD around the age of two and was more recently diagnosed with Asperger's at the age of 6. The doctor that did the evaluation stated that my son met all the criteria for an Autism diagnosis however, due to his ability to communicate he was diagnosed with Asperger's. I had/have difficulties myself and was diagnosed with ADHD at the age of 17 however, my doctor is trying to get me fully evaluated because meds for ADHD are not helping 100% so, we're trying to figure out if there is something more.

12Introductions Empty Re: Introductions on Mon Feb 06, 2012 12:39 am

earthenvessel

earthenvessel
Hi all, don't think I've introduced myself on here yet. Actually it's been a while since I've been on the site. So, I'm a homeschool mom of 3. Matthew is 13 years, Becky is soon to be 12 years and Josh is 10. Josh is my Aspie.

In my research to learn and understand more about Josh's Aspiness, I discovered that I to have Asperger's. This realization has brought into focus so much of my childhood and even adult life that I didn't understand. It has also helped me to relate to my son as I see so much of myself in him.

I saw in one of the posts on here that there is a Face Book group for AAA. Can someone please share that addy with me so that I can join?

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