American Asperger's Association Support Group

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Different Directions

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1 Different Directions on Sat Sep 26, 2009 1:11 pm

Dr. Ron

Dr. Ron
Well I just sent out a video email on Kid Safe Chemicals Act or something like that; it's a proposal (not yet a law yet it is a bill to be moved and voted on). Who really knows what causes Autism (or any ASD), what vaccine, what chemical/electrical toxin, what little change in the water that caused that little Mitrochondria change shape? Let's look at what helps and what only helps for some or a little, and what is a bunch of BS ....cure alls, snake oils, and magic wands for a price. Okay, I'm a physician, so!!! study and I would really like to know what interventions, therapies, medications, or whatever works. I am also a scientiest that wants to help these kids. If we, as healers, are not sure of the different options for different kids then how can we promote what we do?
Dr. Ron Cool

2 Re: Different Directions on Sun Sep 27, 2009 9:15 am


Flaxseed oil and hbot helps!
weighted blankets help sometimes
Meletonin does help with sleep sometimes
Occupational therapy helps

3 Re: Different Directions on Sun Sep 27, 2009 12:06 pm

Dr. Ron

Dr. Ron
Okay, what does Flaxseed oil do, how does it help, does it have to be oil or seeds or ground or ? [b]
How does Occupational Therapy help? Does it work and how long does it take?
What do you think is the best treatment, the next best and the next best? What about diets...glutten free etc. ????

4 Re: Different Directions on Mon Sep 28, 2009 10:32 pm


Personally, we use a high concentration of fish oil (careful to watch out for the ones with mercury, etc.)... it gives more or less the same effect as flax-seed oil, but the theory is that it is loaded with DHA, EPA, a bunch of amino acids, etc... basically all of those good things that help brain function and development. We definitely notice a difference in Richard's behavior... when he chooses to take it that is. The stuff we have is in flavored liquid form, and he more or less has to choose to take it and he usually goes through long periods of taking it and long periods of refusing it.

Another thing I've noticed that helps is a pro-biotic/digestive stomach enzyme once or twice a day mixed in with his drink at a mealtime. The theory behind this being that most ASD's tend to have digestive issues, and this helps to keep things moving. My son, being gluten free, doesn't get too much fiber outside of raw fruits since he refuses veggies and most gluten free grains are low in fiber, so we spike his drinks every now and again with a half dose of MiraLax to keep him moving.

The gluten free thing itself I was skeptical about, but once I read about it, it made quite a bit of sense and we tried it. Recently, we took him off the diet just to see what would happen. It lasted literally for one meal before we put him back on. He became uncontrollable. We attempted taking him off casein (milk), but he refused any and all milk substitutes, even in percentages (part regular, part new; etc)... plus, he doesn't seem to have the same reaction to it as he does the gluten.

Melatonin, Melatonin Melatonin. Again, it is well known that ASD's are poor sleepers. If you'd like your child to ever get any decent sleep... or any sleep at all... Melatonin is the key. We use anywhere from 1.5 mg-3mg, but its getting closer to 3 these days. Plus, he wakes up at least once every night and we sometimes have to re-dose him to get him back to sleep.

I'll agree with the weighted blanket to some degree in our case, it seems to calm Richard down a little, but he rarely will use it until he is ready to calm down, if you know what I mean. I can't just go get the blanket to calm him down, it will upset him more. He has to want it on his own.

My son has had some sort of speech intervention/therapy pretty much for the last 3 1/2 years. That has definitely helped. He began treatment at 20 months, spoke his first words (mama, boo, dada) the day before mother's day when he was 27 months, he had no back and forth conversation skills until he was 4, and now at 5 1/2 you can barely tell there's any delay. He still has quite a bit of echolalia, which is to say a bit of what he says is repeated phrases from things he's heard from other people, TV, video games, etc.

He started occupational therapy within the last year and a half, and that has helped with his fine motor skills.

They are starting him on social skills/behavioral therapy now as well, but just being in school seems to help there.

Pre-school was amazing for him, it brought out social skills, a sense of self worth, and the most wonderful language abilities that we never could have provided at home by himself.

Personally, I don't believe the numbers have gone up as drastically as it seems... maybe a little... but I think the main thing is the studying & education of the disorder, and the addition of new/other separate disorders to the spectrum. This obviously increases the percentages.

Do I think vaccinations cause spectrum disorders? No... quite honestly, I don't. Maybe the really old ones before they began mandating them better might have triggered something in some kids with the trait for it to show up earlier or more forcefully, but did it cause it? No, not in my opinion, I think the trait was already there. My son has been vaccinated fully since birth. Yes, he's autistic, but looking back knowing what I do now, I see things that were traits of autism from day one, before his first vaccination... so I guess, there you have my opinion...

Last edited by KelleyNNelson on Tue Sep 29, 2009 1:03 am; edited 1 time in total

5 Re: Different Directions on Tue Sep 29, 2009 12:45 am


Dr. Ron wrote:Okay, what does Flax-seed oil do, how does it help, does it have to be oil or seeds or ground or ? [b]
How does Occupational Therapy help? Does it work and how long does it take?
What do you think is the best treatment, the next best and the next best? What about diets...gluten free etc. ????

I meat to address these questions specifically, and then forgot. The oils you can pick up in pretty much any pharmacy, grocery store or health food/vitamin store. I recommend the vitamin or health food stores because they usually have a wider and more healthy variety, however they can tend to be a tad bit more pricey. Sometimes you can get them in pill form (for instance, I take fish oil in pill form) but obviously kids can't... so they come in liquid form. Again, getting them to take it is something else again. Sometimes mixing it with a juice or something works, but not always. I've already mentioned what the theory is into how they are supposed to work.

Occupational therapy is meant to help children with motor skill delays as well as sensory integration disorders. Richard uses his OT primarily to assist his fine motor delay, but they also do a little more with him too since he doesn't like people touching him and he doesn't like to touch other things... Usually, they start off with something like "body brushing" which can either be done with a semi-stiff brush or your hands in almost a massage like tension to stimulate their nerves and actually, it calms them down... Then, I've seen them have Richard play with putty and have him push it and poke it to try and find hidden "treasures" inside it to encourage him to try touching new things... then after that, they work a little bit with his fine motor skills and more specifically, handwriting. I think how fast it works depends on the child, it's not something that is set in stone. I know at home, when I'm trying to calm him, I "body brush" him with my hands. He especially loves his feet and legs rubbed.

I guess I've already mentioned the diets I've tried with him, I know there are others out there though. So far, this is what works best for us. For those of you who are unfamiliar with the gluten and casein free diets, the theory behind these diets is that many spectrum people have an intolerance for these ingredients... which are in pretty much everything we eat. Instead of their bodies processing it normally, it more or less processes it like a drug similar to morphine and gets them high... so if you have an obsessive carb/milk adddicted child, it's likely they are addicted to the gluten or the casein (a product found in cow's milk) in these products. It was almost night and day when my son finally detoxed from gluten... but it will take a few weeks, and it will get worse before it gets better. You have to remain strong and realize they will not starve!! The best book I've read on diets (more than just GF/CF) is called "Special Diets for Special Kids" I understand there's a second version out now, which is good as the first was written in 1998, and while that's the one I read and was full of great information, I bet the second will be even better and full of much more current info. Here is the Amazon link, which will show you both editions:

As far as "best treatment, next best, etc.," the best I can say is quite honestly it's a guessing game. It's all trial and error. Some things work, others don't. Some things work for Richard at school, but not at home and vice versa. Sometimes, things that have worked in the past stop working... Every child, is different; they have a different set of symptoms and a different set of things to deal with. You just have to keep trying and keep looking for answers until you find the right combination that works for you.

6 Re: Different Directions on Tue Sep 29, 2009 3:14 pm


I agree with everything Kelly said. It's also different with every child it seems; for instance some children seem to respond better to body brushing for quick calming, while the other child seems to respond better to absolutily nothing sometimes.. than you have the 3rd child who responds quickly to a deep bath ( which is heavy pressure according to O.T.) I forgot about diet, but that is HUGE. For Kailey, we found that she was actually allergic to things..but if we mess up and she has something that contains milk, her behaviour is aweful. She does not listen, throws things, bites, screams etc. She is allergic to milk, so we watch labels closely but sometimes we do mess up.

Occupational therapy helped Kailey by exposing her to different textures, different exercises etc.. to help her overcome some of her sensory integration problems. They also helped by educating myself and Chris on how to address issues and how to keep the home environment "sensory safe" for Kailey; and techniques to use during meltdowns.

About a week or so after starting Kailey on 500mg of flaxseed oil, we noticed a change in her behavior. Her attention span was longer, she wasn't melting down as much, and she wasn't waking up every 2 hours at night..she was sleeping through the night! If you quit taking the flaxseed oil, the effects go away. With the HBOT, we have noticed more lasting effects;; less meltdowns, better sleeping, and she is A LOT MORE SOCIAL!!!! not scared of everything like she was!! HBOT has changed Kailey from being so scared, to being happy. She has not had a treatment in a few months and she has not declined.

Probiotics help some kids with the gut issues; for Kailey it did not at all. She is on miralax 1 cap daily, everyday. Colase 2.5mg, and levsin as needed for pain. Nothing natural has helped her, ( prune juice, etc) As long as she gets her meds, she doesn't have pain. If she refuses to drink her milk with the miralax, she will have pain the next day so sometimes we have to give her levsin.

Exposure therapy ex: making them face their fears, cry it out. DOES NOT WORK!! OT tried this, and it made things worse!

Oh, we just get flaxseed oil in the gel caps, poke a hole in them and squirt it into her rice milk.

Meletonin helps Kailey fall asleep. Her sleep routine is very specific and she will not OR can not go to sleep if the routine is different. All lights out, Tv on (NOT CARTOONS) body brushing, deep massage, potty, jammies and diaper, night time milk in sippy cup, than she lays by me. I scratch her back for the first 10 minutes, than rub her face until she falls asleep after that. I can move her to bed once I know she is sound asleep. Right now it is still easier for us to move her in bed with us when we are ready for bed because if she rolls over and feels nothing, she wakes up, and the night time routine starts over. When we had a heavy blanket I was able to put her in her own bed, but it ripped Crying or Very sad 10 lbs of rice all over the place.. so I need to make a new one!! With a heavy blanket, she didn't wake up to make sure I was still next to her.

7 Re: Different Directions on Thu Oct 01, 2009 9:03 am

Dr. Ron

Dr. Ron
This is all very interesting material; love it. I love you Keep it coming and let's see if we can get some other ladies to begin to comment. Kim, Kelly see if you can contact at least two other ladies; either with AS or with ASD kids. I am still looking for ladies with AS to see if there is a difference in boys and girls in making a diagnosis. scratch This is all great stuff about your children. Thanks, Dr. Ron

8 Re: Different Directions on Sun Oct 04, 2009 2:31 am


whoa.. your in ohio?

9 Re: Different Directions on Sun Oct 04, 2009 9:37 am

Dr. Ron

Dr. Ron
I am in Clearwater and recovering from the flu; I don't think it is the Swine flu cause I look more like a drowned least that is the way I feel. Rats. Dr. Ron

10 Re: Different Directions on Sun Oct 04, 2009 10:23 am


oh, your location says Dayton, Ohio Posts: 65
Joined date: 2008-12-19
Age: 72
Location: Dayton, Ohio

Sorry you have the flu.. I doubt it's the swine flu, you'll be okay. Lot's of fluids. Do you have a fever? Is it affecting your resperitory system? I hope not. Again, lots of fluids, and if your fever doesn't go away in a few days.. go to the doc!! or do you have to do that?? anyway, hope you feel better soon! sunny oh and don't throw up.. that's just yuck. get some zofran, it works

11 Re: Different Directions on Mon Oct 05, 2009 12:54 am

Dr. Ron

Dr. Ron
I am improving; and the good thing is that I do not have to go see a doctor. I am of the opinion that if you want to stay healthy, you may want to stay away from the doctor. Now the wife has the flu...yuck....Dr. Ron

12 Re: Different Directions on Mon Oct 05, 2009 8:04 am


but what if it turns from a virus to bacterial? and then it gets in your lungs and you get bronchitis or something?? Although I did hear something about garlic used as an antibiotic a long time ago?

13 Re: Different Directions on Tue Oct 06, 2009 11:38 am

Dr. Ron

Dr. Ron
Ah, I once used garlic and didn't have a date for three months. Only kidding; during a plague in the middle ages garlic was wrapped around the neck, the wrists, and the ankles to ward off the plague. No one lived to tell if it worked or not. Dr. Ron

14 Re: Different Directions on Wed Oct 07, 2009 10:11 am

man of a million names

Well in that case it probably didn't work, did it?

15 Re: Different Directions on Wed Oct 07, 2009 1:16 pm


Two recent studies have shown that garlic can be a potent antibiotic. Particularly impressive was that garlic was effective against strains of pathogens that have become resistant to many drugs. One study showed that garlic juice showed significant antibacterial activity against a host of pathogens, even including antibiotic-resistant strains such as ciprofloxacin-resistant staphylococci. The second study, conducted on mice, found that garlic was able to inhibit a type of staph infection that's become increasingly resistant to antibiotics and increasingly common in hospitals. This type of staph infection has become a potential danger for health care workers, as well as for people with weakened immune systems. Sixteen hours after the mice were infected with the pathogen, garlic extract was fed to them. After twenty-four hours, garlic was found to have been protective against the pathogen and to have significantly decreased the infection.

16 Re: Different Directions on Fri Oct 09, 2009 12:41 am


good, largo Fl

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