American Asperger's Association Support Group

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Adult Aspergers Syndrome

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1 Adult Aspergers Syndrome on Sat Sep 19, 2009 11:18 pm

Dr. Ron

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So what happens to a child, adolescent that has Aspergers Syndrome and moves into adult life? Do they just disappear, suddenly get "normal", or get set in some persistent pattern of being "different" in life; for example take the tall, slender fellow on the TV series, "The Big Bang Theory"...who many have described as playing the role of someone with Aspergers? Question Shocked
I am following a young man with Aspergers Syndrome and I have observed his gradual move into the mainstream...and he is begining to blend in more and more yet he is fully aware that he has more difficulty in doing so than others. cheers He has been aware of his diagnosis for years and because of that he has worked on adjusting his behavior, attitude, and emotions. I am quite impressed with his adjustment in dealing with AS. cheers In his case, early diagnosis has shown to be quite effective. sunny Would this be the case in all situations; would everyone with AS improve or be better in the long run if the proper diagnosis is made? I have thoughts on this; what do you think? scratch Dr. Ron

2 Re: Adult Aspergers Syndrome on Sun Sep 20, 2009 12:16 am

Jerry Graham


In my case I still havent been properly diagnosed but its fairly obvious I am. I think yes they would be better off knowing at a younger age. The only downfall to that I think is using it as a stumbling block or crutch. It's really tough to say as I have other overlapping diagnosises going on. That is just my opinon. I do believe in most situations early diagnosis would have be alot more effective. I think it would've help me to know that early on. What do the rest of you think?

3 Re: Adult Aspergers Syndrome on Sun Sep 20, 2009 12:46 am

KelleyNNelson

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I think definitely if the proper diagnosis is made early, or even at all, it increases the chances of a more "normal" life for people on the spectrum in the long run.

I look at the leaps and bounds my son has made in the past 3 1/2 years, and it amazes me. But if he had never gotten that diagnosis and the help he needed to help him progress, who knows where he'd be even now at age 5? I picture him never learning to speak. I picture him having constant fear and anger. I picture him falling further and further into a world in which no one but himself exists. I picture us not being able to take care of him and unfortunately having to put him in a home. And that's what happened years ago to many an autistic patient and family.

Luckily, we've had assistance in one shape or another since he was 20 months old (although his "official" autistic diagnosis didn't come through until he was 4, but we knew by the time he was 3 and in pre-school - in the beginning, it was simply a severe speech delay diagnosis, but that was good enough) and that has helped him to learn, grow and move forward in life. It was baby steps at first, but then, things began to snowball.

He is in Kindergarten now, reading and doing math at about a 2nd grade level. He is in a reading club!! His social skills, while maybe a bit awkward, are better than I've ever seen. His speech grows with each day and he's speaking at about a typical level for his age (if not always appropriately) even though he didn't say his first word until he was nearly 2 1/2. There's talk of total mainstream at his school, with autistic support along with his obvious continuing speech and occupational (and maybe behavioral!!) therapies... and we're totally OK with that. He's spent a day with the mainstream kids already and did quite well with only one "shutdown". He already spends part of the day with the mainstream kids for reading/language arts and PE.

All of this may be by chance... who knows, he could have done all of this on his own diagnosis or no, help or no. All I know is how he was before we got him the assistance he needed and how he was after. He still has his moments, trust me. We deal with them, as any parent does. But yes, in my opinion diagnosis is key.

Does this make it all go away after they grow up and move on? No, I'm sure it doesn't. I'm sure even as an adult my son will clamp his hands over his ears when he hears certain noises... or at the very least, if he has learned some "control," he will cringe until the noise passes because I'm sure he'll still be sensitive to noises even as an adult. I'm sure he'll still be eating the same old familiar foods even as an adult, I bet that gustatory sensitivity will always be there as well. And I bet I'll have to call him to remind him to eat, because he seems to have no hunger cues and never has. I doubt that'll change much. I'm sure he'll spend some of his day bouncing/jumping, running or spinning to get out that vestibular seeking need and endless energy he has. I'm sure he'll spend some of his day admiring and playing with his collection of cars, complete with the stimming "vroom" sound that goes with it, if he's alone that is, to take care of that vocal/auditory stim.

But with all that said, I bet you he's going to be one hell of a guy regardless, all thanks to all of the doctors, teachers, assistants, therapists, everyone else who's helped us along the way and that one piece of paper that gives him his diagnosis and opened him up to all of this help he's gotten.

4 Re: Adult Aspergers Syndrome on Sun Sep 20, 2009 5:32 am

man of a million names


well me personally, i think early diagnoses is best, because 1) i had one and i'm constantly amazing myself at the progress i made, and 2) pretty well most of the stuff kelley said. i would repeat it, but i'm in a hurry. so yes, most definitely, early diagnoses is the best way to go. there should be some diagnoses programs at preschool/kindergarten/possibly daycare. it would effectively help the US nation of aspies(f)/aspians(m)/aspies(neu).

5 Re: Adult Aspergers Syndrome on Sun Sep 20, 2009 7:54 am

csweepigirl

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I'm sure earlier detection is better. Now kids with A.S. who are more "prone" to being bullied etc.. can be in smaller classrooms, have IEP's, have teachers that understand.. Those things were not available 15 yrs ago.. and without these services, school life for a kid with A.S. can be hell.

6 Re: Adult Aspergers Syndrome on Sun Nov 22, 2009 1:14 pm

Sybil

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I'm going to be 50 next year & only learned I have Asperger's Syndrome about 2 1/2 years ago. I don't have an official diagnosis, but have taken the online quiz, read everything I could find online/at the library/books I've purchased about it & watched ALL the YouTube videos. I wasn't even looking for info about myself when I started reading about AS: I was looking for info as to why my grandson had always had rocking behavior since he was less than 1 year old (he's 6 now)... I'm still hesitating even trying to get a diagnosis, because I'm afraid they won't believe me. I struggle daily with this & it is exacerbated by PMDD & OCD. Don't tell me I don't have AS... I'm positive I do; finding this out has been one of THE most validating things in my life! Also I now know I've found out why I'd always felt so "weird" growing up & all my life & it explained SO much about my past. I've researched it enough to be sure. So that's what happens. I often wonder what it would have been like if this condition was known about when I was little (born in 1960), but that's a pretty moot point, isn't it?

7 Re: Adult Aspergers Syndrome on Sun Nov 22, 2009 4:07 pm

KelleyNNelson

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I'm not sure I've properly welcomed you, Sybil... if not, Hello and Welcome, sincerely.

Asperger's is such a fairly new addition to the medical society, it's making almost easy for many to realize that's why many people had such a hard time throughout life. Myself, Kim, and many others in this community included.

Your grandson would benefit greatly from a diagnosis, throughout school and life because he would get many therapies and much help in life skills to help him cope with his "disability" as it were that none of us were ever privy to in our "age" or schooling.

It's really up to his parents, but if they are up to any help for their son, then I would definitely suggest it given how much it has helped my own son, who is nearly 6 himself and has exhibited symptoms of autism since way before his first birthday, looking back and knowing what I do now of the disorder.

Of course, what you and your family do is totally up to you guys, along with the severity of your grandson's "disability," however the more help he receives the younger he is, the better off he will be when he is older. That much I guarantee. I hope this helps you and your family's situation.

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