American Asperger's Association Support Group

Latest topics
» Chambers of Hope (COH) and American Aspergers Association (AAA)
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSat Jul 27, 2013 1:29 pm by csweepigirl

» Introductions
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeMon Feb 06, 2012 12:39 am by earthenvessel

» June 4th 2011
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeFri Feb 25, 2011 6:22 am by csweepigirl

» Free Home Speech Practice Home offer
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSat Feb 19, 2011 2:21 pm by csweepigirl

» Support group meeting and hbot volunteers
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeMon Dec 20, 2010 9:35 am by Dr. Ron

» Favor....Locals..read..please...
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeMon Oct 11, 2010 7:46 am by bondgary009

» Developmental Disabilities (AAIDD) is hosting the first of its best practices webinars
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeFri Aug 27, 2010 4:51 am by csweepigirl

» We need to start this website back up again!
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeMon Aug 23, 2010 2:33 am by man of a million names

» Group Home Manager is Yelling I Need Help
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeThu Aug 05, 2010 3:10 am by csweepigirl

» Facebook
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeMon Jul 05, 2010 2:27 am by KelleyNNelson

» Support Group Meetings 2011 *EDITED*
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeWed Jun 23, 2010 3:57 am by KelleyNNelson

» community happenings!
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeTue Jun 22, 2010 6:01 am by asg_tlm@hotmail.com

» Asperger's (how it is diagnosed and treated)
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSat Jun 12, 2010 4:27 pm by csweepigirl

» What do you do when people look at you by the pills you take vs. the person you are?
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSat Jun 12, 2010 4:01 pm by csweepigirl

» Items under your nose that are gluten free, and cheap too!
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeWed Jun 09, 2010 5:59 am by KelleyNNelson

» Adam
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeTue Jun 08, 2010 1:19 am by man of a million names

» Looking for friends
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSat Jun 05, 2010 8:51 pm by channing28105

» Maas-Rowe Carillon Questions
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSat Jun 05, 2010 8:51 pm by channing28105

» Video Emails from Dr. Ron
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeTue May 11, 2010 1:40 am by Dr. Ron

» Ah, it's good to be back.
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSat May 01, 2010 5:03 am by man of a million names

» 1st Annual Aspergers Volleyball Tournament
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeMon Apr 19, 2010 2:03 am by Dr. Ron

» free event: Therapeutic Recreation Adapted Sailing and Kayak Clinic
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeThu Apr 01, 2010 3:20 am by csweepigirl

» Help! I Seem to be Getting More Autistic!" ARTICLE
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeMon Mar 29, 2010 10:22 am by csweepigirl

» Was this teacher out of line?
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeWed Mar 03, 2010 10:31 pm by lovethefish

» OMG THE PLACE IS REMODELED!!!!
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeWed Mar 03, 2010 2:38 am by KelleyNNelson

» Got Plates?
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeTue Mar 02, 2010 1:19 am by KelleyNNelson

» Local IEP Advocate!! THANKS VAL!!!
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSun Feb 28, 2010 1:16 pm by csweepigirl

» Pinellas ESE advisory board meetings
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSat Feb 27, 2010 12:31 am by lovethefish

» Dentists who use sedation.. thanks Dr. Ron
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSat Feb 27, 2010 12:28 am by lovethefish

» Hey GAB!!!!!!!!!!!!!!!!!
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeWed Feb 24, 2010 5:25 am by csweepigirl

» Autism in the news: WASHINGTON (Reuters) - A hormone thought to encourage bonding between mothers and their babies may foster social behavior in some adults with autism, French researchers said on Monday.
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeThu Feb 18, 2010 7:01 am by csweepigirl

» **********echo*******************
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSun Jan 31, 2010 11:16 pm by KelleyNNelson

» Any ideas on how to make a gluten regression easier for both child and family?
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeWed Jan 06, 2010 9:47 am by csweepigirl

» Hi! Long time no see.
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeMon Dec 21, 2009 3:04 am by KelleyNNelson

» Hellooooo? Need some freakin' help here.
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeTue Dec 15, 2009 8:50 am by man of a million names

» Cats or dogs? Summer or winter?
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeMon Nov 23, 2009 6:47 am by man of a million names

» Mozark and the whale *aspergers movie* on showtime on demand.. SUCKED by the way
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeMon Nov 23, 2009 6:42 am by man of a million names

» Adult Aspergers Syndrome
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSun Nov 22, 2009 4:07 pm by KelleyNNelson

» Asperger’s Syndrome: A Developmental Puzzle by Michael McCroskery
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSun Nov 22, 2009 12:22 pm by csweepigirl

» Really Cool Super Awesome Thing! Kim And Kelly You Have To Read This!
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeFri Nov 20, 2009 4:24 am by man of a million names

» 2 Articles of Interest Re: Aspergers
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeThu Nov 19, 2009 6:15 am by csweepigirl

» Accidently stubled across some info about meletonin oops!
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeTue Nov 10, 2009 2:41 pm by csweepigirl

» Lack of Services for ASD
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeMon Nov 09, 2009 8:04 pm by Dr. Ron

» New and having a hard time
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeWed Nov 04, 2009 3:40 am by lovethefish

» Sorry I haven't been around as much (update)
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeTue Nov 03, 2009 10:53 pm by KelleyNNelson

» Having a hard time again
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeTue Oct 20, 2009 8:35 am by man of a million names

» Important paradox/riddle! Anyone care to help with it?
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeMon Oct 19, 2009 10:46 pm by KelleyNNelson

» Follow through or not.
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeThu Oct 15, 2009 4:01 am by csweepigirl

» New Pediatrics Autism Study Putting Prevalence at 1 in 91
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeWed Oct 14, 2009 11:45 am by csweepigirl

» Different Directions
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeFri Oct 09, 2009 12:41 am by csweepigirl

» AS is a very difficult diagnosis to make.
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeThu Oct 08, 2009 1:47 pm by csweepigirl

» How is everyone?
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeMon Sep 21, 2009 9:48 pm by Jerry Graham

» CD to benefit the AAA ~!!!!! Check this out!!
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeMon Sep 21, 2009 11:14 am by bassfiddlesteve

» I met Joe Diffie's son!
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSun Sep 20, 2009 8:01 am by csweepigirl

» Anyone feel like helping me smack the crap out of my former boss?
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSun Sep 20, 2009 7:56 am by csweepigirl

» Lazy or Aspergers?? or both?
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSun Sep 20, 2009 5:20 am by man of a million names

» The right thing?
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeTue Sep 15, 2009 7:27 am by man of a million names

» Mark Fowler and his wonderful work.
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSun Sep 13, 2009 5:51 am by man of a million names

» A.A.A. RESEARCH STUDY. Do you see any differences between females with Aspergers vs. males with Aspergers
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeThu Sep 10, 2009 1:49 pm by csweepigirl

» What happened?? because I don't know, do you?
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeThu Sep 10, 2009 6:24 am by man of a million names

» Haha, Funny URL.
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeWed Sep 09, 2009 9:15 am by man of a million names

» Dude! Kim, I forgot to tell you... and maybe anyone else at the last meeting...
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSat Sep 05, 2009 4:59 am by man of a million names

» My son is making strange noises!
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeFri Sep 04, 2009 11:41 pm by KelleyNNelson

» Terrible sound on video
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeFri Sep 04, 2009 9:30 am by man of a million names

» Aspian or Aspergian?
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeFri Sep 04, 2009 7:22 am by man of a million names

» If you, or you know someone who needs a BIG/HUGE carseat..
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeFri Sep 04, 2009 12:33 am by csweepigirl

» Just a quick hello
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeWed Sep 02, 2009 7:37 am by man of a million names

» We started the FLDRS process...and here's what we found out so far
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeWed Sep 02, 2009 7:19 am by man of a million names

» Support Groups
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSun Aug 30, 2009 1:31 pm by KelleyNNelson

» (Aspergers) Boy Meets Girl Movie
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeTue Aug 25, 2009 8:13 am by man of a million names

» I give up, with trying to ever just relax, really.. I'm so flustrated!
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeMon Aug 24, 2009 9:15 am by man of a million names

» Basic White or Yellow Cake
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSat Aug 22, 2009 6:33 am by man of a million names

» When did this category get here?
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSat Aug 22, 2009 1:55 am by man of a million names

» Pork Fried Rice
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeThu Aug 20, 2009 11:17 pm by man of a million names

» Why Are The Private Messages Still Disabled????
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeThu Aug 20, 2009 10:48 pm by man of a million names

» Sorry I've been M.I.A.
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeWed Aug 19, 2009 6:04 am by man of a million names

» 5Km Run For AS!
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeFri Aug 14, 2009 11:30 pm by man of a million names

» Help for a mother.
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeWed Aug 12, 2009 12:01 pm by Dr. Ron

» Aspergers and empathy
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSat Aug 08, 2009 11:41 am by csweepigirl

» We are the three amigo(a)s!Aanyone care to join?
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeFri Aug 07, 2009 12:42 am by man of a million names

» Vaccinations, Red Book, What?
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeThu Aug 06, 2009 12:21 am by Dr. Ron

» What is the first step?
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeWed Aug 05, 2009 7:14 am by Dr. Ron

» Children who can’t cuddle
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeMon Aug 03, 2009 1:27 pm by csweepigirl

» Challenging popular myths about autism
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeFri Jul 31, 2009 10:59 pm by Dr. Ron

» I NEED your HELP!!
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeSat Jul 25, 2009 2:41 am by melissa

» Ok..what do I do? any suggestions..
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeFri Jul 24, 2009 3:53 am by melissa

» Back home!
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeWed Jul 22, 2009 2:10 pm by KelleyNNelson

» Any spanish speakers willing to help an aspie in spain?
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeWed Jul 22, 2009 1:34 pm by csweepigirl

» Gluten Free Simple Bread
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeTue Jul 21, 2009 11:49 am by csweepigirl

» More research (genetics)
very anxious, I don't know the right thing to do!!!!!! I_icon_minitimeTue Jul 21, 2009 11:43 am by csweepigirl


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very anxious, I don't know the right thing to do!!!!!!

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csweepigirl

csweepigirl
Admin
Ok, so today Kailey had a follow up with the neuropsychiatrist **who I thought was a developmental ped** anyway, she wants Kailey to be in a study for P.A.N.D.A.S. which is a syndrome caused by strep. She would be given either placebo antibiotics for 12 weeks, or the actual antibiotic. I'm kindof "iffy" about this doctor. She makes me personally nervous.

Pros: She's in an insurance GAP, so it would provide some sort of therapy for her, oh it also involved cognitive behavioural therapy!!! so that would be good I think, but I don't know. The insurance will be fixed by next week. If it is infact PANDAS, this will be beneficial for Kailey

Cons: gut feeling, antibiotics she may not need, risk of a misdiagnosis.....on all of the paperwork I filled out, most of it was OCD screenings. Could also be traumatizing to Kailey, although she warmed right up to this doctor and assistant..no meltdown what so ever.

The doctor is Dr. Murphy at All Childrens Hospital, part of the USF group.

Opinions PLEASE!!!!! they want me to bring Kailey in next weds at 8:30am

the only one of Kailey's doctors that I trust is Dr. Reinstein, her GI specialist. Ugghh.. more freeking therapy... IDK.. maybe I'm just freaking for nothing

csweepigirl

csweepigirl
Admin
[b]After talking with my husband, and getting the opinion of another very educated doctor, We will NOT be doing this "study" as Kailey does NOT present any symptoms of OCD, or ADHD.

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